Love and Cannabis 0016: Selecting the correct CBD & what's a 'Balance Bike'?

Selecting the correct CBD is challenging.   There are many different brands using different types of CBD, some with additives, some without.   The process becomes even more complicated when the patient is a child.  Osiris Stephen and Nina Simmons share stories and provide guidance from their ongoing struggle to find the correct type of CBD for their son.

Produced By MJBulls Media | Cannabis Podcast Network

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LC0016 D.mp3 was automatically transcribed by Sonix with the latest audio-to-text algorithms. This transcript may contain errors. Sonix is the best way to convert your audio to text in 2019.

Dan Humiston:
For too many years, families have children with devastating illnesses. I felt helpless as they watched her child suffer. Today, they're taking matters into their own hands and finally finding relief, treating their child with Cannabis. This is one family's story.

Osiris Stephen and Nina Simmons:
Welcome to another episode. of love and Cannabis. I am Nina Simone and I am osiris stephen and we are the proud parents of and then everyone.

Osiris Stephen:
How's it going out there? Hey, thanks for tuning in. Yes, thank you very much for joining us. Another episode.

Osiris Stephen:
So we wanted to continue our SO from last in reference to our change in our brands that we've been using CBD wise and dosage. And what we've seen and why we changed. It's been a really, really eye opening experience, was thankful for us is the fact that we were documented and we can cross reference from what we've seen and why we decided to make the change that we made.

Nina Simmons:
Yeah. So before we get to that, so people approach us with just basically asking us what CBD oils that we use that we use would recommend what we would recommend.

Nina Simmons:
So in general, when you're looking for a CBD product, you want to start it for a child or yourself or a family member. I would definitely find a product that will give you a lab report.

Osiris Stephen:
First and foremost, you need to know what's been going on with that.

Nina Simmons:
So you want to make sure that you have a clean product out there where you see what you mean. No pesticides, heavy metals. Lies. You know that they're farming. You know, they do use good farming practices. So you want to make sure it's a clean product that basically no dirty other stuff based that is basically free from land. Things like that. So the lab reports will tell you this.

Osiris Stephen:
From a good company and reputable from a reputable company, and then they will also tell you what's in it.

Nina Simmons:
A lot of if you're doing a full spectrum oil, which means the whole plant thus believes everything is everything.

Nina Simmons:
That means you're going to get some other things in there besides CbD, which are not bad things for the most part. Me turbin, you get turbines which give the CBd its aroma flavor too, and flavor as also has been known. Also have some neuroprotective properties and die in and inflammatory properties. So there's still more weezer's to be done on Tobins. But you know, a lot of them are there for good good reason.

Nina Simmons:
Then you want to know what other cannabinoids are in? The oils, or it could be CBD, which probably isn't the main one, which power takes up. Five to 90 percent of the oil, but sometimes oil has this thing to get in. It's not OK and is into this. Another time, another park has bought some of them out like we call CBG, CBC. So you'll see all those things.

Osiris Stephen:
Yeah, it's it's it's a lot. It's a lot. Yeah. You definitely have to get a book that breaks each one down. Something simple to get you start, especially if you have no clue how this works or what what the plan is. Exactly. Definitely. Do your research, take your time.

Osiris Stephen:
It was a hard as you have time, but you don't have to because you want to get better. You don't want to waste time and you want you to if you use it for a child as well. Exactly.

Nina Simmons:
And then the latter part will also tell you how much THC is in the product and then they can explain to you what exactly does that mean and how much you should use, how often it's of a journey.

Osiris Stephen:
But you gonna learn so much from it.

Nina Simmons:
As I said, this is something taught me. Don't be afraid to ask questions and to really ask for guidance because there's a series using this to help a child may be really sick or you may be using this for cancer.

Nina Simmons:
So you want to make sure the oil. You know, is the good stuff?

Osiris Stephen:
Yeah. And people are available to talk to you and ask you your questions.

Nina Simmons:
Exactly. So another thing the companies always come with, you need droppers, right? Oh, I find that using a one ml syringe is more accurate. Yeah. So most of the time the company was a use half a drop or use a full dropper. That's fine. But I think if you are going to be dosing medically, you really want to know. Exactly. Yeah. Put to the precise measurement of what it is. Yeah. So you want to make sure you're giving point eight. You know you want 2.7 sometimes kid. Mean I take a full MR. You mean you get them point nine. So you really want to have those like pneumococcal measurement. So I would recommend buying what amounts orange. That's what we use. We never use that wrapper. Yeah, because if we did we also know then the number.

Osiris Stephen:
So I was using it. I say for us this is a little bit inaccurate. And also you want to see any amount or you're using a ZAGG a little more.

Nina Simmons:
Yes.

Osiris Stephen:
Instead of the oil lasting two weeks is going to last a week or we can have. And so that's something we definitely want to keep in mind when you're using a dropper versus a syringe. You can get a syringe also from a pharmacy.

Nina Simmons:
Just walk up and say, hey, I know you don't want to needle are or want to ml syringe. Yeah. And you said use that. Or you ordered online. You're not going to find one. I'm also range in the aisles. I don't think we've ever. No. You had to get from the pharmacy. Yeah. I can access into the pharmacies who have it to go with their meds. Yeah. Children.

Nina Simmons:
I just is up this up post came up and that's one of my social media feeds. And it is called the Center for Food Safety Score Card. So basically the Center for Food Safety is a national nonprofit, public interest and environmental advocacy organization, working to empower people, support farmers and protect her from harmful impacts of industrial agriculture.

Nina Simmons:
So they came up with their Hemp oils last CBD score card where they took a 40 CBD companies and they had just not that much, if not more. Yeah. It's taught me so much more. And they basically wrote them apart and gave them.

Nina Simmons:
A ratings like, you know, you'll see at a restaurant, A, B, C, D and even F and a good amount F F you, sir. Yeah. Well there's some there's some garbage out there. Yeah. So if you want to check that out and see which companies got an A and B you want to use those companies up to you do it. They do explain to you why certain companies got a or just want it, why some companies got to see. It was pretty interesting. I mean currently the CBD to Aiden is taking assignment on there. So I don't think it's because the company you're using is not on there. What's important that is working and you get a result. Egea is a port in Asia getting working, getting a resource, and you do have allowed port to stay fit. State that they are there any. Like I said, heavy metals and exactly impurity.

Nina Simmons:
So I mean, if you want to check the Center for Food Safety Hemp CBD score card, check it out and you can, you know, make a decision from there. But again, is not it only took for Komp 40 companies in this, maybe 400 companies.

Osiris Stephen:
I mean, is it like, well, that kind of house? But, you know, for a person who's this their first time, they're really hearing so many different voices. Yes. What's the best Dena. products and try for what specific things that you feel it would work for. They have a score sheet done for you already. Really? So they did all the vetting. So now comes out too. Well, I'm feeling a certain way. This might work. Let me see which products that they read it as. You can help me with these particular Amazon or whatever I'm feeling at the time that I needed. So that helps.

Nina Simmons:
Yeah. And for those who really want something, USDA organic, they do list the companies that are not that many is really that many because it's very hard to get their certification. Oh, yeah, very, very. So it's very, very hard. And not to say if the company that you're using is not USDA organic or is not that good, is that that is I mean, is not good. GROSS. How could I just sometimes I'm company not even have the money or resources do to get the certification. Yes. They may be organic and pass, but there's so much money just to get them to certify you that a company may not be able to do it.

Osiris Stephen:
And there's also a serious process to.

Osiris Stephen:
Yeah. You have to pay for that process. You have to pay for everything. Yeah. So it's like a money thing and scheduling it.

Osiris Stephen:
So it is just the type of spoken to someone about that is it? It is so much work. You have to make sure your machines are right. You have to make sure that land, everything that you work, it has to be pharmaceutical grade level.

Nina Simmons:
I guess a good thing then.

Osiris Stephen:
Yeah, it is. It is weird for someone just starting out of the industry. It's kind of difficult. So you have to face you got to see for that.

Nina Simmons:
So basically you're saying that if you're not USDA certified, does it mean that you're a bad product? No, not at all.

Osiris Stephen:
And I know it's just that if that's a if that's something you're looking to get to do, expect to be not easy. Not to say that your product is not good anyway. It's just that. He's got a challenge just to prove that that's all.

Nina Simmons:
Got it. So, yeah, so that was for. Look up if you're interested.

Nina Simmons:
Center for Food Safety. Hemp CBD Score Board.

Nina Simmons:
If you're interested in seeing what they have to say in which CBD products are. Organic.

Osiris Stephen:
And, you know, it doesn't have to be organic. It just has to basically serve your needs. And that takes you testing it out. Yes. And for a sample, they might be able to help you. Say, look, I'm worth something. I need some assistance. How about a sample as the hour work?

Nina Simmons:
Yeah. And also, don't be afraid to call these companies. Allow them a very, very friendly and hopeful. Yeah. Was it do the legit ones that do have a answering service. Yeah. Not all of them have answer service or a customer service.

Nina Simmons:
Yeah. So far you definitely want to try to have to find a company that has an answering service. I will actually answer you when you call. Yeah. And they actually. And they don't know what they're talking about. And then they can really support you. So that's a yes. That being said, we tried quite a few oils. With aid.

Osiris Stephen:
Oh, yes. It was a long list. We've tried something. Ah, the experiment thing. It was crazy we would experiment with different types of oil.

Osiris Stephen:
We would also experiment times a day of the earth. This is your where and how to administer the oil.

Whether oil through recto, through food, through drops, through the gum is at one point. It was daunting to go through all these levels.

Osiris Stephen:
I mean, we really started out with the droppers and the syringe, but it seemed like it wasn't really suppressing his Stitcher started to we got some good moments. And then also it just changes a month or a couple of months or even after years, like, okay, now we have to change it because he's gotten older. He was having his growth spurt. He was needing more water. So we were learning all these things as we go along and we just say we got a document because it's too many variables right now is affecting him.

Nina Simmons:
Yeah. So we go to one oil, then we'll have results and then one experience we had that we were doing really great. And then we started seeing changes and then we like we looked in the back, look, man, they added this additive.

Osiris Stephen:
Yeah. Because it started triggering seizures. So we noticed that because in the beginning his seizures would be Frei was under control. Maybe wanted to jerk's here and there. And then I think after oil finished and we replenish it, then we noticed a change.

Osiris Stephen:
After we we we purchased a new bottle, same product, same everything, but they sort of have a different effect on.

Nina Simmons:
Yeah. So those kind of things we look out for as a additives that we saw. Then we had to look at the kariya oils. Yeah. We went through the Eglee went through with ingredients we like. OK, he's kind of sensitive to m.c tealeaves. All we know now. No m._c Teela Well maybe we're just so much FCI.

Osiris Stephen:
It was like it was like eight medium chain. Yeah, it got to 6 or something. It was eight. It was eight. So we had to make sure that he doesn't get that.

Osiris Stephen:
It was like, wow is another one. It was another company. The way had legend. oil and let his uses emulsifier in most products, especially cosmetic products and they had is oil and before they didn't have it. But we were trying to figure out what's wrong, why the seizures and had an uptick was going up. So Nina, just grab one of the oils, the new bottle, and we compare for somebody who we just kept the old bottle and something in our store said, you know, keep your bottle just case. And we compared and noticed that the one difference in the ingredient was the legend oil like, oh, my God. And we call them we've little record company and like a lot of guys included. Oh, we use that for musafa just expands the life of the product and also prevents bacteria in things like yeah, but it just does trigger us on seizures like oh I'm sorry, we'll send you another bottle. Is is a logo of the same thing. Lakshan.

Nina Simmons:
Well so yeah. So we had it, we had to stop using that company even though the company is very gracious to us. Yeah. And very kind but which it wasn't helping and more. And then oh Saras being in the industry he's always getting people wanting to try their oil.

Nina Simmons:
Yeah. So we had not had a person that you know said that oil was I think very gerlock his it epilepsy but it had the legend. And I said I was very excited, but I live. Here we go again with the lesson.

Osiris Stephen:
Let's see. Yeah.

Nina Simmons:
And we used it and we did see this season. OK. There is just no way.

Osiris Stephen:
Because you had that back in question back then. It maybe wasn't listening. It's just us. So you get a whole different product, same ingredient, same result.

Nina Simmons:
Yeah. So like those things like they were. Debbie, I see. People say, oh, Seabee doesn't work or hear for my child. I mean, how many oils as you try? How many company did you try? You have to try at least one. The two companies and the water alone. Yeah. I'm sorry. Yes. Many companies pay you to really say that it was a fail and then you have to wait. You can't just say after a month after two SRB, you know, it's a long process.

Osiris Stephen:
Yeah. Especially also that you have to dose the products on the end dosing because no two wasn't made to say no to ors a process to say in a way. And we were very fortunate to find one recently that's been working. Ideally how we know this. Well, Aiden was having grand malls at every morning, 4:00. Every morning, like clockwork goes are ridiculous, and we tried different steps. We tried different dosages, times to see if we can combat it. We were trying to understand what is cortisol levels were like in comparison to what is it doing to date, see animals that's affected or that played a role into it. So all these things that we started analyzing or analyzing overthink, he's just trying to understand what is going on. When he's ready to go to bed from 7:00 p.m. to 10, 11:00, what goes on to goes to him? That would trigger at 4:00 a.m. like Clockwork D Grand Malls.

Nina Simmons:
So we just came. So basically, I realized that it was his cortisol levels that rise up about two hours or so before his time for him to wake up. So we try the new oil and we came up with a method, they had to have precisely the CBD oil at 10:00 p. m..

Osiris Stephen:
Well, that's what we saw there was 7 p.m. because we give them two doses.

Nina Simmons:
Yeah. So we did want to 7. You wanted 10 and we realized that that was working.

Osiris Stephen:
Yeah, it was working. So. So the grandmal stopped.

Osiris Stephen:
, but the thing is, we have to wake him up at p.m. p.m. rough.

Osiris Stephen:
Yet. He was not happy. Oh, my God. Because imagine you're in your best sleep. You haven't slept so peacefully in a quiet time. And now you find yourself being weak. And at 10 p.m., he was losing Madison being shut down.

Nina Simmons:
But a work which we did that way. He was so much better.

Osiris Stephen:
So. Yeah. Yes. And completely stop. Yeah. Maybe one or two jerks in the morning. And he was great the rest of the day.

Nina Simmons:
So was I. But then I figure it out if he goes, this is really crazy.

Nina Simmons:
I figured out if he goes to bed, he's sleeping before 8 o'clock. We can do all the CBD at 7:30 and we'll hold them off for the rest of the night. I think something to do with the cortisol levels again.

Nina Simmons:
Not quite sure how it plays on, but it works. But if he goes to bed after 8:00, we have to wake him up and he has to get to see Budowle at 10:00. Yeah, it's crazy.

Osiris Stephen:
So in the morning he does get it as scheduled. He gets it. But 6 a.m. Susie wakes up pretty much what someone had mentioned. Well, basically the people from the company itself told us, you know what? Put it under his tongue. Let it sit under his tongue. Would you give it better absorption? We try that the evening and as we said, you know what, let's try this, too, as well. Let's come by the 10 p.m. dosage with the 7 p.m. dosage so we don't have to wake up this kid who's screaming, mad, crying, kicking, scratching and punching. It loses his bisque. So, I mean, if you were if you were living next door, you would swear we're talking this kid. That's how crazy it sounded. Carry him. Go at it.

Osiris Stephen:
So we did this and it actually allowed him see throughout the night and held him as well through the morning.

Osiris Stephen:
So no seizure activities, no hiccups. Mind you, before that, we were seeing changes as well.

Nina Simmons:
So so it definitely does work. What we're doing right now.

Nina Simmons:
We also we also added a new I don't want to say too much about it, but we also added a new method where we are giving a lot of fish oil.

Osiris Stephen:
Oh, yeah. You could say, yeah. Yeah, we give him fish oil. We read somewhere about that. And then olive oil. Olive oil. Yes. I mean, good luck if you get kids to take this stuff down. You need more power to.

Osiris Stephen:
It is so cousin to how you could put it in their food. You right? Oh yeah. You could sprinkle. But Aiden's been able to take us tablespoon of it daily with no issues.

Osiris Stephen:
We actually give him fish oil capsules, which he takes. The Afrique councilman takes them too. So we are doing a lot of things to keep this young man health.

Osiris Stephen:
Yeah. I think we see a big difference with the fish oil. Yes. Have you seen it? Ink's feting condemnation.

Osiris Stephen:
He definitely says things are funny. Or would that come from, you know. And as a kid, you know, that doesn't read. Communicate their minds, doesn't say as much as you would think a kid at his age. Things were just coming off his tongue like it was. He's always been talking like, well. And his smile puts a smile on my face as I. Wow. So I have a conversation that we start talking and I realize it. And we also like to communicate with him while he's exercising, too, which helps. So all these things you got to keep in mind, it's you're always thinking like, how can I take. Where he is now to the next level. How do I integrate the routine that we're doing to also include, you know, cognitive skills, motor motor skills, you know, all those things that you help them develop that, you know, you would get from school but reinforced at home?

Nina Simmons:
Yeah. So learn new things that we're doing is that we have Aiden on a balance bike.

Osiris Stephen:
Yes, the balance. So you're saying ever I know you grew up with the downs by learning on the pedals, learn how to ride a bike so everyone sees it and then bounce back.

Nina Simmons:
So it always has some kind of comet. I mean, I had a comment like where the pedals. So. OK, so for those of you of obviously born in the 80s, 90s, early 2000s, don't know what this is because we did not use this growing up. Yeah, I don't use either. I don't know that. And that's still out in anyone really using it. But.

Osiris Stephen:
I've seen no, I've seen them in in New York. You see progressive families. They will use these bikes to help their kids.

Nina Simmons:
Yeah. So basically the new thing is that you don't use training wheels anymore. So Chenu, that's the lesson that you don't even use pedals. There's no pedals. Oh, knows what I say. So basically, you don't use training wheels or pedals anymore to have your kid learn how to ride a bike before you were use to train wheels first and then you take them off. So with the balanced bike, it comes the training wheels out the door balance.

Nina Simmons:
Bike is basically a bike without any pedals. You can make one on your own where you take off the pedals of your bike and you know, after, you know, trainers or you go buy one. So in sport, so he is both. So the rationale behind a balanced bike is that he start training the child on learning how to balance and balance themselves on a bike. First, they have to master that. So basically they're using their legs. To navigate the bike and they'll work on that by using their core owners, so you want your own your stomach muscles and backflow basically using your balance because they're saying that the hardest part of riding a bike is not pushing the pedals is actually maintain your balance. You start with that first on the balance by. After they're done with the balance bike, they can go straight to a bike without training wheels because the training wheels is an end. In England they call it stabilizers. Yeah, and that's what it does is stabilizes the bike so you can go on the bike without having the balance part, without learning how to balance yourself. So your we learn that on the bounce bike. So now I can go on a bike without females. And as I watched many YouTube videos on this and it's been working and it cuts that part out where the kids are falling excessively and getting frustrated. But for Aiden, I realize that any of that still steps to be broken down and a lot of harm to learn how to ride a bike, because having the steps of balancing and using the leg muscles was a little bit too much.

Nina Simmons:
So would be in that balance by phase right now and its work is as gone as legs stronger, he's more aware of what he's doing and it's not easy.

Yes. Yes. You know, you got to trials and arrows. Yeah. I am trying to coordinate is left. Right.

Osiris Stephen:
It's not like he's the scooter which took time where he learned how to push off his left leg and push off his right leg. But it had also made us aware of where he's weak. So what I've noticed, as is now, is his right leg is weak when it comes to pedaling. He'll use his left leg from heel toe. But when he's using his right leg to push off, he'll just go toe.

Osiris Stephen:
So that's something like, you know, keeps in mind that, OK, we need to work on certain areas to get him balanced on the bike to using all his muscles, especially his lower extremities.

Nina Simmons:
And where a kid is, try any kid, even if they're typically developing, let doing a scooter that will bike, they are going to be frustrated. They're going to want to seem more like you want to give in. But as a parent, you have to push them to make sure you stay on the bike and make sure they stay on. Could it ever gonna learn and never learn that you have to work hard to get something? Yeah, I'm closing. Yeah. And most of these like Grossmont are things like jumping well, riding a bike, riding a scooter. They take practice. A lot of practice. Not like you. Then a step to a rope. I know I jump rope or things like that. The kids need to learn and practice things as good for their brains, too.

Osiris Stephen:
Yeah, definitely. Just overall, health wise, mental and physical. And we take it for granted that kids who are without any ailments could do those things easily. Did jumping up and down on French shore all the time. They're running around with kids. But when a child does have had some seizures like AIDS and all that was brain, certain things are not clicking with him. So it does take time. It does take coordination and patience. And so does he may not have those patients for it, but he does not give up. His mom is where he wants to quit, but he'll get right back on it, especially if you him. And once he notice that he's getting it and you basically reward him in acknowledging that he's happy. He's like, yeah. We'll keep doing them. Keep doing that. We're going to see him really riding a bike and probably pedaling a bike sooner than later.

Nina Simmons:
Yeah, that's the. I can't wait for that. That's definitely sliding.

Osiris Stephen:
Looking forward to it. So don't be afraid to take shape. Our challenge is on and changing certain routines. Trying to think of rewriting your child's brain, just changing habits. The activities and get him to do things. I know for some parents a little bit more chance because the child is stationary. There are things you could do from sitting down, whether you think the child maybe cognitively at the time or even aware that, you know, they're doing something or nothing at all. Put something in their hand. Get them to feel something. Squeeze something. Just try to work with their child at where they're at and see if you could take them to the next step.

Nina Simmons:
So funny is that we had a discussion with, you know, a lot of stuff weighed in. Today's the balance by. We went to the park. It was a beautiful day. And then those sirens did some weightlifting with aid. And today. And, Wolf, we kind of agree that he needs this physical activity more than some of these like sight words and all that stuff like this should be.

Osiris Stephen:
The most important thing we do with him, if anything, is the physical activity and his ways of also including things that are academic within the physical activities. Yeah, like counting. Oh, yeah. And having alphabet's words that he can make using his body to do so is like a movement.

Nina Simmons:
Yeah, his act is everything's working together.

Osiris Stephen:
But it takes sounds almost like you're almost home schooling in a way by creating these types of environments for your child to work at is not easy. Granted it is exhausting. Yeah, but your child's worth it. I think what the goal is is it's definitely worth in from what we've seen so far and how much he's progressed.

Osiris Stephen:
It's just been amazing. And it's through our hard work and his willingness to do try because it's easy just give up and not want to do which he does sometimes. But we push him and he resists for a bit. But then he gives in and starts working and he really puts in he's just and we have this vacancies as parents, we got to stay consistent and stay on top of the kid if you want him to succeed at anything.

Nina Simmons:
Yeah. So I think that is it. Yeah.

Osiris Stephen:
Thank you all for tuning in. Another episode has been great, Chad.

Osiris Stephen and Nina Simmons:
All right. What? Thanks for tuning in. Another episode of Love and Cannabis I'm orisir stephen and I nina simmons be strong and say empowered.

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